So yesterday I pulled out the NG tube (again, I do that about ever 1-2 days). The NG tube is how they were feeding me through my nose. The doctors chose to leave it out to see how I would do on my own, just taking food by mouth. Per Mom, I did OK taking about half of what the doctors think I need with each feeding, but I still get tired very easily. We will see how much weight I gain or loose over the next day and go from there. Wish me luck and energy.
We're rooting for you, Sam, and sending love and energy your way. Sean, Laura and Luke
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