Hard to be Zen.

Looks sweet, doesn't he.


So Mommy's turn to talk.  After accidently sleeping through the 11 pm feeding and waking up at 12:45 (ie now we get up every 2 hrs instead of every 3)  at 3 am I was feeling pretty Zen about the whole sleeping only a couple hours every night and that I would make it through this.  I held Sam for about 1 hour so he wouldn't spit everything back up and then pumped.  At 4 am I am washing the pumping supplies getting ready to start all over again at 5, and hear Sam making cute little noises and walk over to notice he had pulled out the NG tube.  Zen just isn't a state I should be get comfortable in I guess.

I am home.

Dressed and in my car seat


Well I am now home.  Tube and all.  More to come as Mommy settles in and can type for me.

39 and 3/7 weeks- 2-21-14

Sam and Baby Jesus

With Mommy's ring

Peek-a-boo.

Sam and Teddy

My new best friend, Teddy.  And he makes a great heartbeat noise as well.

Going Home Thursday!

Well on Friday I again gained back the 15 grams I'd lost, but Mommy was concerned I was becoming averse to eating overall so the put the tube back in my nose and fed me over the weekend.  I gained 55 grams both Friday and Saturday ( about 1 1/2 ounces).  On Sunday I lost 20 grams, but overall pretty good ( today about 4 lbs 15 ounces).

They also did a acid reflux test which was positive so now I am on a medicine for that.

Today Mommy, Daddy and the ICN team decided to give sending me home with the tube a try and see how I will do.  Mommy is going to learn how to reinsert it and my parents are going to try and prevent my brother, mad me, from messing with it.  I will have a certain amount of food to take in every 3 hours and if I don't meet it orally, I will get it via the tube in my nose.  My doctors think I will eventually take all my nutrition myself, but it could be a few more weeks yet, and that my family can handle my care at home.

Also had an MRI of my brain today, just in case, and it was fine.

So a pretty busy next few days.  Wish me luck and good sucking.

Lost Weight so home is a no go.

Well I lost 15 grams (1/2 ounce) today and thus don't get to go home any time soon and likely not until Monday.  The doctors say I much gain about 30 gram (1 ounce) for a least a couple days straight before they will let me go home.

No one is sure why I am not eating better and I am certainly not telling, but Mommy sure wishes I would.  They are going to do a test today to see if I have acid reflux and are going to try some new fortifiers to see if it is just I don't like the taste of the current fortifier they are mixing with Mom's milk to give it more calories per ounce and try a probiotic.

Wish me luck.

?? Going Home Friday

Well, I have now been without the feeding tube for 7 days and although I continue to go up and down almost daily with my weight I overall remain even with where I started last Wednesday.  (I was 2140 g last Wednesday and am 2150 today-that is about 4 lbs 11 oz either way).  I have not had any problems with breathing or my heart rate for 4 days now (The cut off is 5 day) and my hospital team feels there isn't a whole lot more they would do in the hospital than Mommy could do at home, so we are going to give going home a try provided all goes the same Friday.

Mommy is scared to death.  I think she has become a bit used to having the nurses in the hospital to lean on.  I explained to here that sometimes you just have to jump in and that I will be OK.  I will still be seeing my regular doctor every 1-2 days to make sure I am safe and at least maintaining my weight.  I will still need protein supplements to my food.