Well on Friday I again gained back the 15 grams I'd lost, but Mommy was concerned I was becoming averse to eating overall so the put the tube back in my nose and fed me over the weekend. I gained 55 grams both Friday and Saturday ( about 1 1/2 ounces). On Sunday I lost 20 grams, but overall pretty good ( today about 4 lbs 15 ounces).
They also did a acid reflux test which was positive so now I am on a medicine for that.
Today Mommy, Daddy and the ICN team decided to give sending me home with the tube a try and see how I will do. Mommy is going to learn how to reinsert it and my parents are going to try and prevent my brother, mad me, from messing with it. I will have a certain amount of food to take in every 3 hours and if I don't meet it orally, I will get it via the tube in my nose. My doctors think I will eventually take all my nutrition myself, but it could be a few more weeks yet, and that my family can handle my care at home.
Also had an MRI of my brain today, just in case, and it was fine.
So a pretty busy next few days. Wish me luck and good sucking.
Good luck Sam! Happpy eating.
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