Well, I have now been without the feeding tube for 7 days and although I continue to go up and down almost daily with my weight I overall remain even with where I started last Wednesday. (I was 2140 g last Wednesday and am 2150 today-that is about 4 lbs 11 oz either way). I have not had any problems with breathing or my heart rate for 4 days now (The cut off is 5 day) and my hospital team feels there isn't a whole lot more they would do in the hospital than Mommy could do at home, so we are going to give going home a try provided all goes the same Friday.
Mommy is scared to death. I think she has become a bit used to having the nurses in the hospital to lean on. I explained to here that sometimes you just have to jump in and that I will be OK. I will still be seeing my regular doctor every 1-2 days to make sure I am safe and at least maintaining my weight. I will still need protein supplements to my food.
Saying prayers that everything goes well so a trip home happens. Mommy, you'll do just great, I know it! Way to go, Sam!
ReplyDeleteThat is great news! Mommy, you will do great and feel better about it once you see things are going well!
ReplyDeleteI know that scared to death feeling all too well. You will do great!
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